Resources for Researchers
Saskatchewan Centre for Patient-Oriented Research resources
- Onboarding Guide for New Patient-Oriented Research Teams: Provides a list of things to consider when you begin a new patient-oriented research project. This guide was created by patient partners based on things that are important to them.
Indigenous Research Level of Engagement Tool (IRLET): Measures the degree to which a given project meets patient-oriented research criteria in the context of Indigenous communities. Find the IRLET and the IRLET Companion Document to get started today.
Patient-Oriented Research Level of Engagement Tool (PORLET): A simple way to consistently and fairly measure patient engagement. Download the PORLET and find the PORLET Companion Document.
The Primary Care Ontario Practice-based Learning and Research Network hosted a webinar series on Equity, Diversity, Inclusion, Indigeneity, and Accessibility in Research. This series is for anyone who wants to learn more about building these principles into their work. You can also view the series on the Alliance for Healthier Communities site.
Data Security 101
In this course, the data life cycle will be explained with the objectives of improving data management, ensure the protection of patients’ rights and privacy, and providing strategies to avoid potential security issues. The structure of the course follows the different steps of the data life cycle. This course was developed following a needs assessment study that was conducted with graduate students, researchers and the Réseau-1 Quebec. Learn more here.
Addressing patient partner concerns regarding the use of validated questionnaires in research
A PIHCI Network grant team recently published an article discussing mechanisms to address potential patient partner concerns regarding the use of validated questionnaires in research. See the October 2021 issue of Health Expectations: Reconciling validity and challenges of patient comfort and understanding: Guidelines to patient-oriented questionnaires (Catherine Hudon et al.).
Patient & Public Engagement Evaluation Toolkit
The research team of the Patient and Public Engagement Evaluation Toolkit project proposes to various health system stakeholders a wide range of tools to assist them in the evaluation of patient and public engagement initiatives, both in health research and in health care.
The Evaluation Toolkit is a resource designed for practitioners of the health sector, produced after the completion of a rigorous systematic review of patient and public engagement evaluation tools.
Réseau-1 Québec resources
These resources are listed in French but many resources are either in English or are bilingual. https://reseau1quebec.ca/recherche-et-ressources/ressources/
Alberta SPOR PIHCI network resources
Alberta SPOR SUPPORT Unit Patient Engagement resource library: https://absporu.ca/resource/page/1/
This SUPPORT unit also has useful items like a Patient Oriented Research level of engagement tool: https://absporu.ca/resource/scpor-patient-oriented-research-level-of-engagement-tool/