Date and Time
18 Mar 2026, 12-1 PM ET, Zoom
Summary
This Learning Session offers an opportunity to meet Expériences, a self-managed Francophone community of patient partners, founded in Quebec and committed to advancing health partnership in Quebec and beyond.
Embedded within the Quebec SPOR Support Unit, Expériences now brings together more than 3,000 individuals interested in health partnership.
Expériences stands out for a unique feature in Quebec—and a rare one within Canada’s research and healthcare ecosystem: the community is led and self-managed by health partners. Its direction, priorities, and activities are driven and shaped by patient partners. This embodied governance serves as a powerful lever to ensure the relevance, authenticity, and credibility of its actions.
In the Canadian context, marked by linguistic and cultural diversity, Expériences contributes to promoting a Francophone perspective on health partnership, while also seeking to build bridges with Francophone communities across the country.
Objectives
- Raise awareness of the unique model of Expériences, a self-managed Francophone community led by health partners in Quebec.
- Foster connections and collaborations among Francophone communities and health partnership stakeholders across Canada.
Panelists
Karina Prévost, patient partner
Karina Prévost has been a patient partner for over ten years and is Co-Director of Expériences, a self-managed partnership community within the Quebec SPOR Support Unit. She is also Co-Lead of the EDIA guiding principle for the Digital Health Network, a member of the CMDO Scientific Committee, and a member of the Committee on Social Responsibility and Sustainable Development at the Collège des médecins of Québec. She is actively involved in research, training, and governance, and has collaborated on more than twenty research projects in Quebec, across Canada, and internationally. Within Expériences, she helps co-facilitate a space led by and for patient partners, where experiential knowledge is recognized and mobilized to advance health partnership. She firmly believes in the power of collective action to transform practices and systems.
- Co-Director of Expériences, a self-managed partnership community within the Quebec SPOR Support Unit-
- Co-Lead of the EDIA guiding principle for the Digital Health Network
- Member of the CMDO Scientific Committee, and member of the Committee on Social Responsibility and Sustainable Development at the Collège des médecins of Québec
Catherine Wilhelmy, patient partner
Being a health partner for Catherine means committing her knowledge as a patient, caregiver, and citizen to improving the health system. As the Patient Partnership Lead at the CHUS Research Centre, co-leader of Expériences, and Scientific Co-Director (patient partner) of the SPOR Support Unit — Québec, she contributes to the structured integration of health partnership across care and services, research, education, prevention, and governance. She is guided by the conviction that health cannot be imposed; it is co-constructed in awareness and the honoring of others.
- Co-Director of Expériences, a self-managed partnership community within the Quebec SPOR Support Unit
- Patient Partnership Lead at the CHUS Research Centre
- Scientific Co-Director (patient partner) of the SPOR Support Unit — Québec
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