Dear Members,

We imagine many of you are busy with your SPOR Refresh focus groups and look forward to hearing how these have gone and sharing feedback from our own sessions. Exchange and learnings from such meetings are always valuable.

Speaking of learnings, we are excited to have kicked off our 2024 Learning Series with two sessions in January, both part of a focus on Creating Shared Solutions to Common Problems in Practice Based Research and Learning Networks. If you are interested in seeing the recordings and / or viewing the slide-shows, please head to our website where you will find the relevant links by date.

This edition of our newsletter will focus on some key Save the Dates, including more of our Learning Series, a number of conferences, including that of the CPCRN, to be held in November in Quebec City, just before NAPCRG. Registration links will be shared soon.

Please be sure to share this newsletter with anyone you think might be interested. Please sign up for our monthly newsletter here.

As ever, we look forward to connecting with many of you virtually or in person.

Be well,

—The CPCRN Team

Network News

Goodbye to Kent Cadogan Loftsgard & Katie Upton

We are grateful to both Kent and Katie for their time and efforts on the CPCRN’s Patient Council. Their voices and experiences have been truly valuable to our network as we grow and establish ourselves. We wish them well in their future endeavours.

Welcome to Amy Svotelis

Welcome to Amy Svotelis who recently started as the Operations Coordinator for Réseau 1 – Québec. She brings extensive experience in research management and partnerships through her diverse background in public administration (FRQS) and academia (Bishop’s University, CHUS Research Center). With her expertise, she will oversee the planning, coordination, and implementation of the network’s new vision. She will also lead their community of practice for PBLRNs and encourage collaboration and knowledge sharing. We look forward to working with her.

Save the Dates – Conferences

CHSPR Annual Health Policy Conference, March 5th, 2024 – Vancouver

The 36th annual CHSPR health policy conference will explore the future of drug coverage in Canada at a time of potentially significant policy development. As millions of Canadians cannot afford their prescription drugs, the federal government is in the process of developing new legislation that will enable a more coordinated approach to pharmacare. The conference will survey the history and future of drug coverage, including vital topics such as equity in access to medicines, the history of reform efforts, and the emerging use of real-world evidence. The event will be offered in hybrid format. Registration is open! Register here.

International Conference on Integrated Care, April 22nd – 24th, 2024 – Belfast, Northern Ireland

The International Conference on Integrated Care is taking place in Belfast, Northern Ireland on April 22 – 24, 2024. The conference will bring together leaders, researchers, clinicians, managers, community representatives, patients and caregivers from around the world who are engaged in the design and delivery of integrated health and care. Two of our members are presenting with their teams:

  • Dr. Catherine Hudon and Mireille Lambert will present the development of a program theory on the scale-up of integrated care programs: Elicit an initial program theory on the scale-up of integrated care programs: first step of a realist synthesis.
  • Dr Shelley Doucet, Dr Alison Luke and Charlotte Schwarz will co-present an implementation analysis on facilitators, barriers and outcomes of our case management intervention: Case management for individuals with complex care needs: Factors assisting and hindering implementation and positive outcomes.

Canadian Healthcare Navigation Conference, May 1st – 2nd, 2024 – Virtual

The 4th Canadian Healthcare Navigation Conference will be held virtually on May 1-2, 2024 over 2 half days. This year’s conference will highlight Innovations in Healthcare Navigation. Abstracts are welcome on a variety of topics, including innovations in healthcare navigation practice, education, administration, and research.

Early-bird rates are available now until March 14th, 2024. Register on Eventbrite! (Individuals with lived experience are eligible to apply for a registration subsidy. Group discounts for groups of 10 or more).

Submission information for abstracts, or poster and oral presentations, can be found here. Deadline Feb 27th, 2024.

CAHSPR May 14th – 16th, 2024 – Ottawa

Reminder that the next CAHSPR Conference is coming up in May. Registration opened on February 1st, 2024. Visit their website for more details.

International Congress for Circumpolar Health, June 18th – 20th, 2024 – Yellowknife

The 18th International Congress for Circumpolar Health (ICCH18) will be held on June 18–20, 2024 in Yellowknife, Northwest Territories, Canada. The Congress is the world’s premier circumpolar health event co-hosted every three years by a national society and the International Union for Circumpolar Health (IUCH). Its main purpose is to facilitate vital knowledge exchange among community and health sector leaders, decision-makers, researchers, service providers, and communities dedicated to improving health in Circumpolar regions.

Details about the conference can be found here. Abstract submission details here.

CPCRN Conference, November 18th – 19th, 2024 – Quebec City

We are excited to begin sharing the details of our inaugural CPCRN Conference taking place at the Hilton in Quebec City just before NAPCRG will start. The theme will be Learning Health Systems. Please click here for more details.

Save the Dates – Learning Series

The Role of Primary Care Practice-Based Research and Learning Networks in Pragmatic Clinical Trials: Improving Patient and Community Health through Enhancing Primary Care Science

February 27th, 2024 from 12 – 1  pm ET

Panelists:

  • Dr. Andrew Pinto, Founder & Dir. of Upstream Lab & Prof. University of Toronto
  • Dr. Daniel Merenstein, Dir. of Research Programs Family Medicine, Georgetown University Medical Center

Please click here to view the flyer.

Please follow this link to register on Zoom.

Essential Learning Health System Structures in Primary Care: What Are They and How Did You Implement Them?

March 26th, 2024 from 12 – 1 pm ET

Panelists:

  • Jennifer Rayner (PhD), Dir. of Research and Policy at the Alliance for Healthier Communities, Research Professor at Western University at the Centre for Studies in Family Medicine and Assoc. Prof. at University of Toronto in the Department of Community and Family Medicine
  • Mpho Begin, Member of the CPCRN Patient Advisory Council, Member of the HDRN Public Advisory Council, Member of the PAN & CDHE Patient Partner Evaluators

Please click here to view flyer.

Please follow this link to register on Zoom.

Evolving Practiced-Based Research and Learning Networks (PBLRNs) into Learning Health Systems Through Co-Design with All Stakeholders

April 23rd, 2024 from 12 – 1 pm ET

Panelists:

  • Onil Bhattacharyya (MD, PhD), Director, Women’s College Hospital (WCH) Institute for Health System Solutions and Virtual Care, Frigon-Blau Chair in Family Medicine Research, WCH, Associate Professor, University of Toronto)
  • Ayat Salman (PhD), Operations Director of the Canadian Primary Care Sentinel Surveillance Network (CPCSSN) at Queens University, Chair of the ISO 276 in Biobanking and Biotechnology)
  • Brenda Andreas(Co-Chair, CPCRN Patient Council, Patient Partner, Research Collaborator)

Please click here to view flyer.

Please follow this link to register on Zoom.

Network Events

Quest Event – March 20th, 2024

Join Dr. Victoria Clarke as she presents Introduction to reflexive thematic analysis. QUEST aims to build qualitative health research capacity in NB and represents a wide range of research expertise, disciplines, and organizations. Join the conversation and collaborate with other QUEST members. To become a member, please e-mail quest-sj@unb.ca. To sign up for this event, learn more or watch previous events, head to the QUEST website.

CPCRN Research Project Spotlight

An Infrastructure for Primary Care to Learn Together with our Patients (CPIN SPOR)

Nominated PI: Sharon Johnston

Objective: The CPIN SPOR aims to collect PREMs and PROMs in various clinics across Canada and develop an approach to linking those responses to EMR and administrative data. The project is focused on building a sustainable approach to collecting patient perspectives. CPIN is building the tools that make patient engagement easier, more accessible, wider reaching, and more reliable, so researchers, policymakers and practitioners can count on being able to get patient input in a timely, focused way and patients can count on a low burden system to capture and amplify their perspective. As CPIN learns from patients, the team will make data and findings available to participating practices to inform practice organisation and clinical care decision making.

Current Progress: A protocol for linkage of data between CPIN and CPCSSN has been created and the software has been tested. The pilot phase of this project has identified interested sites. Learning from the pilot project will inform scale-up of this work. CPIN is looking to recruit a few more practices across Canada. Physician compensation is offered. If you are interested in participating in the study or for more information, please contact: Stephanie Chenail at info@cpin-rcip.com.

PREM / PROM Environmental Scan: The Canadian Primary Care Network (CPIN) has also been mandated by the CPCRN and funded by the CIHR (Canadian Institutes of Health Research) to perform a comprehensive environmental scan of Patient-Reported Experience Measures (PREMs) and Patient-Reported Outcome Measures (PROMs) collection practices across Canada. The CPIN Team invites you to participate in a short survey to share your organization’s involvement in PREMs and PROMs data collection. They aim to identify potential opportunities for standardization and synergy among the various teams involved in this data collection effort.

SPOR Events and Opportunities

Passerelle – World Café, March 8th, 2024

Passerelle is looking for patient participants and research team members willing to share their experiences.They are interested in discussing integrating patient-centered research practices in Canadian healthcare institutions. Click here for more details.

Health System Impact Fellowship Program in Partnership with the CFPC

The CFPC is pleased to announce that, with the generous support of the Foundation for the Advancement of Family Medicine (FAFM), they are once again collaborating with CIHR as a host partner for their Health System Impact Fellowship (HSIF) opportunity.

The Health System Impact (HSI) program provides highly qualified PhD trainees, postdoctoral researchers, and early career researchers in health services and policy research/related fields with the opportunity to develop embedded research projects/programs that address the most pressing problems faced by health system organizations and to support evidence-informed decision-making.

Click here for more details and be sure to select the College of Family Physicians of Canada (CFPC) on the online partner linkage tool. If interested in applying, contact Steve Slade at the CFPC (sslade@cfpc.ca).

Let’s Talk CIHR

CIHR has launched on online public engagement platform and they want to hear from you. Much has changed since the SPOR program launched 10 years ago. This platform provides a dynamic space for patients, caregivers, researchers, healthcare providers, policymakers and others to connect and share insights that will help shape the future of patient-oriented research (POR).  Deadline is March 31st, 2024. Click here for more details.

Recommended Reading

Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health care

Artificial intelligence (AI) is a rapidly evolving field which will have implications on both individual patient care and the health care system.  Read the full article here.

Post COVID-19 Condition – Good Practice Statements

In 2023, Cochrane Canada and the McMaster University GRADE Centre received funding from the Public Health Agency of Canada to create guidelines on Post COVID-19 Condition (PCC). Bringing together 80+ clinical and policy experts, as well people with lived experience, together we form the CAN-PCC collaborative. They just announced the release of 11 Good Practice Statements about Post COVID-19 Condition! You can read them here.

Other Opportunities

ACFAS 91st Congress – Registration & Call for Student Posters (exclusively French event)

The 91st Congress of Acfas, organized in collaboration with the University of Ottawa, will take place from May 13th to 17th, 2024, with, as its the theme, Mobilizing Knowledge in French and will include a full week of events, symposiums, and discussions on research and knowledge. Acfas’ annual congress is the largest multidisciplinary scientific gathering in the Francophone world. It typically brings together an average of 6,000 participants from Quebec, but also international participants the world-over.

Please sign-up here.

Please view calls for student proposals here: Appel 1 | Appel 2